Showing posts with label Work. Show all posts
Showing posts with label Work. Show all posts

Saturday, July 12, 2014

The Myth of the Spectrum: Diversity of Autism is Not Diversity of Weakness


Every living thing is a genius; however, if a fish was judged by its ability to climb a tree, it would spend its entire life believing it is stupid.
                                                                                                                                                -Albert Einstein

                A little over a year ago, when I was looking on a page from the Autism Support Network called Top 10 Terrific Traits About Autistic People, I came across a comment by a mother asking if they could say any good things about level five autism (which her son had), which requires twenty-four hour supervision. At the time I thought, he already cannot live on his own; what’s the point? Today I realized that was wrong and was very cynical and fatalist. 
                Over the years, I’ve gotten to know people with very diverse abilities with incredible personalities, talents, and who have shaped the way I see the world. I happened to know of a non-verbal girl with autism who could not speak, but who also sang beautifully and made beautiful pottery. I know a man with Down syndrome won second place in a pottery contest in high school. I can barely get my hands the right way on the wheel. 
                What I was fortunate to learn in my first year of university life was that there are many different types of intelligence, besides the predominant one of logical/mathematical intelligence, by which our society judges intelligence. The other types of intelligence include natural, musical, existential, interpersonal, bodily-kinesthetic, linguistic, intrapersonal, and spatial intelligence. But in our culture it seems that a person’s level of logical/mathematical intelligence is used to judge the person’s intelligence in every other area. Unfortunately, the prevailing medical model of autism goes by the traditional model of judging intelligence. Autistics and other disabled people who cannot live on their own are simply deadweight, burdens on the rest of society. Of this idea, non-verbal and lower-functioning people with autism are the biggest victims. However, I happened to have met many non-verbal autistics and learned they can communicate and often times live independent or semi-independent lives. Among the non-verbal community is autistic activist, blogger, writer, and poet Amy Sequinza. I’ve been in touch with Sequinza through Facebook and happen to know she is a better wordsmith than many verbal neurotypical people I know. Yet for many parents of non-verbal children with autism, they are feeling, “I wish my son/daughter would say ‘I love you’ or ‘thank you’ for all the work I do for them,” when in fact they are, through the stimming (flapping arms, rocking) that parents like them raise millions of dollars to cure. The definition of stereotyping or caricaturing is to define a group of people by a single or limited number of traits while ignoring individual differences among them. When Suzanne Wright, cofounder of the largest medical model think tank on autism, Autism Speaks, spoke at George Washington University, she said that autistic people are people who cannot dress themselves, brush their teeth, or take a shower. That is what I believe Mrs. Wright was doing, describing certain people with autism yet ignoring differences in their personalities, temperaments, and opinions. For people with that mindset they are assuming that they could never connect to an autistic of this type, but they do not know because they’ve never communicated with them in a way they can both understand. They judge them by how their abilities are in one area (independence), and mistakenly believe that it is an indicator of their abilities and potential in every other possible endeavor. The reality of the idea of autism as a spectrum of abilities is that it is a spectrum of the ability to live independently, not the ability to thrive in any pursuit. The terms “high-functioning” and “low-functioning” deal mostly with an autistic person’s ability to live independently, not the ability to live fully and dignified. Autism is different for everyone, but the desire and right for and to respect and access to reach one’s full potential is not. While independence and self-reliance are gifts that ought to be treasured, we also should value every autistic for what it is they can contribute and realize they have their own gifts to share with the world. 

Monday, April 7, 2014

What Are You Working For? Forum on Autism/Asperger Syndrome and Work


For this discussion I hope to allow people with autism to share their experiences based on what I tell them, in the hopes that we can discover what challenges autistic people face in the workplace, and how they might be prevented or mitigated, and help share this with the public. These questions are not meant to belittle or berate you but to give us a sense of how autism affects people in the workforce. If you don’t answer, please at least consider these questions in your own life if you are autistic and see what changes you can make to it, or in the life of someone you know who is, but please do not answer these questions for them as your answers may not be what they would have in mind. Let us know at the start of your response if you do not want your name or personal information to be revealed to anyone not on this page without a need-to-know basis for sharing and I oblige not to do so. I ask all other people viewing or taking part in this discussion to do the same. For this discussion I want autistic people who are employed or are of an age to be searching for work and for everyone to be completely honest in their answers, though feel free not to volunteer information where you feel it to be necessary. Feel free not to use your name or use an alias name, but in any case, do not mention names of or identifying factors that are too closely tied to the people you mention in your comments, but rather identify people as say your boss, coworker, employee, or customer, and if the information shared about them or your work experience could lead to trouble with these various people, please do NOT share your name. As always please be kind to each person on in this discussion. Any insulting or abusive comments will be deleted. Here is what I hope to find out:


1.       First off, are you in fact employed? 
2.       Have you looked for work? How many job interviews have you been given, how many applications have you filled out, how many times have been asked for or given a resume?
3.       Have you been employed in the past, but are no longer employed or working for your former company? If so why?
4.       Where are you from (your hometown, state, country of origin)? Where do you currently reside? Where do you work (name of town)?
5.       Where (what company) do you work? What is your occupation? What job responsibilities do you have?
6.       What is your level of education and training? Degree? Alma matter? Past experience?
7.       What interests do you have and how passionate are you about them?
8.       How long have you been working for your company? What other work are you qualified for in terms of training and education? What factors prevented or motivated you from taking other jobs?
9.       What does your salary afford you (new car, apartment housing, etc.)? 
10.   Do you spend time with coworkers outside of work? How well do you know your coworkers and employers and how well do you think they know you?
11.   What is the most difficult or stressful part of your occupation?
12.   What do you enjoy most about your job?
13.   Do you commute to work? If so how long does it take you? What sort of work is available in your town of residence?
14.   Are you married? Divorced? Separated? Civil Union? How long have you been married/divorced/separated/etc.? Does your spouse or partner share your condition? Have children? What ages? Any children with autism? How does your salary allow you to meet the needs of these dynamics?
15.   How did you get your position and how did you come by it? Friend? Newspaper ad? Help Wanted sign?
16.   Do you have any other conditions besides autism (AD/HD, bipolar disorder, depression)?
17.   Do your bosses and/or coworkers know of your condition? How has this affected your ability to work with and get along with them and to do your job?
18.   What do you think could happen if you disclosed your condition to your employer as well as your managers, supervisors, and coworkers?
19.   What sort of supports have you had or are currently being given for your autism? How were they paid for or provided? What sort of supports have you had for any other conditions you may have?
20.   What are your ambitions for the next five years? How have they changed and for what reasons over time? What have been your ambitions for today in the past and what are they know? How do you hope or plan to achieve them?
21.   What other factors not related to autism do you feel has enabled you or made it hard for you to do your job?
22.   Are you happy with your job? Would you take it if other jobs were available to you?